Christian Jones-Norquist
was born to Brad and Steffanie Jones on November 22,
1998. H e
was developing normally until he and his parents were
in a car accident on Christmas day 1999. His parents
were killed instantly. Christian sustained a severe
head injury, 2 fractured legs, broken jaw and was
in a coma for a week. Doctors gave a grim prognosis.
Christian was soon shunted because he had continued
intracranial pressure. He was given a subdural shunt
that quickly failed. A VP shunt was put in. He remained
in the hospital for 4 months. Within those four months,
he had 4 shunt revisions to reduce fluid accumulation
and tubing problems. He also suffered from grand mal
seizures, diabetes insipidus, panhypotuitarism (body
doesn't make hormones), respiratory problems and feeding
issues (he was given a feeding tube).
In June 2000, Christian moved in with
Skeets and Kim Norquist. He was 18 months old. He
was able to sit up, smile, hold his head up and reach
for toys. He had reverted back to the cognitive age
of a 3 month old and could barely move. Doctors did
not expect him to ever be able to walk or talk. Christian
immediately began early intervention services, Occupational,
Physical and Speech Therapies. He began to walk at
age 2.5 and used simple signs to communicate. He eventually
began to talk and now at age 7 hasn’t slowed
down!
Christian is currently in ½ day
kindergarten. He continues OT, PT and speech therapy.
He is involved in aquatic therapy and horse riding.
Christian especially loves to play Xbox, he has taught
himself to play the piano (he is VERY musical!) and
he is beginning to learn to read. He also has a baby
sister, Elena, who is 8 months old. Most days Christian
likes to entertain Elena, other days he likes to take
all of her toys away.
Christian has had 6 shunt placements
and 4 shunt revisions (not necessarily in that order).
He now has a programmable shunt and has a few adjustments.
Christian has a seizure disorder, developmental delays,
endocrine problems, he takes daily medications and
a growth hormone shot. He had one shunt infection,
but enjoyed his 2 week stay at Children’s Hospital
watching the same Barney video over and over. He is
a happy, little guy and he’d be happy to have
you listen to whatever monologue you want to hear
from any Pixar movie.
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