Links – Useful Information
http://www.hydroassoc.org – Hydrocephalus Association, San Francisco – Wealth of information about education and advocacy. Will send you information packet by mail.
http://www.nhfonline.org – National Hydrocephalus Foundation
http://www.seattlechildrens.org — Children’s Hospital and Regional Medical Center in Seattle
http://www.ninds.nih.gov – National Institute of Neurological Disorders and Stroke – National Government Information on Hydrocephalus and Research
http://www.medhelp.org/HealthTopics/Hydrocephalus.html - Med Help International is dedicated to helping patients find the highest quality medical information in the world today. We offer patients the tools necessary to make informed treatment decisions within the short time lines dictated by their illness or disease. Our “Virtual Medical Center for Patients” is a collection of information and professional medical support gathered from the best medical organizations and experts in the world. It is composed of: Health Information Library (utilizing the Med Help Search Engine ©) and Question & Answer Medical Specialty Forums, which give patients the ability to ask questions to leading physicians and healthcare professionals.
Other Support Groups for Hydrocephalus
Hydrocephalus Support Group
Location: Swedish/Providence campus (Seattle)
Contact: Diana Pozzi (206) 282-6107
Meets: Third Saturday of every month.
Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield, MO 63006-4236
Description: Non-profit that publishes a quarterly newsletter, provides referrals, sponsors meetings and conferences, and offers an information library of 150 articles and tapes about hydrocephalus.
Hydrocephalus, A Guide for Patients Families & Friends, Chuck Toporek & Kellie Robinson
The Official Parent’s Sourcebook on Hydrocephalus, James N. Parker, M.D. and Philip M. Parker, Ph.D., Editors
Special Kids Need Special Parents, Judith Loseff Lavin
Special Children Challenged Parents, Robert A. Naseef, Ph.D.