Resources

Links – Useful Information

http://www.hydroassoc.org – Hydrocephalus Association, San Francisco – Wealth of information about education and advocacy. Will send you information packet by mail.

http://www.nhfonline.org – National Hydrocephalus Foundation

http://www.seattlechildrens.org — Children’s Hospital and Regional Medical Center in Seattle

http://www.ninds.nih.gov – National Institute of Neurological Disorders and Stroke – National Government Information on Hydrocephalus and Research

http://www.medhelp.org/HealthTopics/Hydrocephalus.html - Med Help International is dedicated to helping patients find the highest quality medical information in the world today. We offer patients the tools necessary to make informed treatment decisions within the short time lines dictated by their illness or disease. Our “Virtual Medical Center for Patients” is a collection of information and professional medical support gathered from the best medical organizations and experts in the world. It is composed of: Health Information Library (utilizing the Med Help Search Engine ©) and Question & Answer Medical Specialty Forums, which give patients the ability to ask questions to leading physicians and healthcare professionals.

Rethinking Treatment Options in Hydrocephalus

Shunt Revisions in Children — Can they be avoided?

Other Support Groups for Hydrocephalus

Hydrocephalus Support Group
Location: Swedish/Providence campus (Seattle)
Contact: Diana Pozzi (206) 282-6107
Email bi365@scn.org
Meets: Third Saturday of every month.

Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield, MO 63006-4236
Tel: 636-532-8228
Fax: 314-251-5871
EMail: hydrob@earthlink.net
Description: Non-profit that publishes a quarterly newsletter, provides referrals, sponsors meetings and conferences, and offers an information library of 150 articles and tapes about hydrocephalus.

Support Group for those with Spina Bifida and Hydrocephalus

http://www.hydrocephaly.com/groups.shtml

http://www.hydrocephalus.org

http://brain.hastypastry.net/forums

Books

Hydrocephalus, A Guide for Patients Families & Friends, Chuck Toporek & Kellie Robinson

The Official Parent’s Sourcebook on Hydrocephalus, James N. Parker, M.D. and Philip M. Parker, Ph.D., Editors

Special Kids Need Special Parents, Judith Loseff Lavin

Special Children Challenged Parents, Robert A. Naseef, Ph.D.