Children's
Hydrocephalus Group Newsletter and Brochure
Children's
Hydrocephalus Group Meeting Notes from April 18,
2006
Summary
of the 9th Annual Hydrocephalus Association Conference,
May 31, 2006
Fall 2006 Newsletter and Meeting Notes
Links –
Useful Information
http://www.hydroassoc.org
– Hydrocephalus Association, San Francisco –
Wealth of information about education and advocacy.
Will send you information packet by mail.
http://www.nhfonline.org
– National Hydrocephalus Foundation
http://www.seattlechildrens.org
-- Children’s Hospital and Regional Medical
Center in Seattle
http://www.ninds.nih.gov
– National Institute of Neurological Disorders
and Stroke – National Government Information
on Hydrocephalus and Research
http://www.medhelp.org/HealthTopics/Hydrocephalus.html
- Med Help International is dedicated to helping patients
find the highest quality medical information in the
world today. We offer patients the tools necessary
to make informed treatment decisions within the short
time lines dictated by their illness or disease. Our
"Virtual Medical Center for Patients" is
a collection of information and professional medical
support gathered from the best medical organizations
and experts in the world. It is composed of: Health
Information Library (utilizing the Med Help Search
Engine ©) and Question & Answer Medical Specialty
Forums, which give patients the ability to ask questions
to leading physicians and healthcare professionals.
Rethinking
Treatment Options in Hydrocephalus
Shunt
Revisions in Children -- Can they be avoided?
Noah's
Life with Hydrocephalus
Other Support
Groups for Hydrocephalus
Hydrocephalus Support Group
Location: Swedish/Providence campus (Seattle)
Contact: Diana Pozzi (206) 282-6107
Email bi365@scn.org
Web: Offering
moral and peer support to those living with hydrocephalus,
their families and friends.
Meets: Third Saturday of every month.
Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield, MO 63006-4236
Tel: 636-532-8228
Fax: 314-251-5871
EMail: hydrob@earthlink.net
Description: Non-profit that publishes a quarterly
newsletter, provides referrals, sponsors meetings
and conferences, and offers an information library
of 150 articles and tapes about hydrocephalus.
Support
Group for those with Spina Bifida and Hydrocephalus
http://www.hydrocephaly.com/groups.shtml
http://www.hydrocephalus.org
http://brain.hastypastry.net/forums
Books
Hydrocephalus, A Guide
for Patients Families & Friends, Chuck Toporek
& Kellie Robinson
The Official Parent's
Sourcebook on Hydrocephalus, James N. Parker, M.D.
and Philip M. Parker, Ph.D., Editors
Special Kids Need Special
Parents, Judith Loseff Lavin
Special Children Challenged
Parents, Robert A. Naseef, Ph.D.
|
