Hydrocephalus
Research Guild -- Formed in 2006 to raise awareness
of hydrocephalus and funds for research at Children's
Hospital led by Dr. Anthony Avellino and Dr. Richard
Morrison.
http://www.hydrocollab.org
Sponsored by the Hydrocephalus Association (HA)
www.hydroassociation.org in San Francisco: Welcome
to HydroCollab -- the place where hydrocephalus clinicians
and researchers can virtually come together to address
issues with hydrocephalus. Read presentations by leading
neurosurgeons and neuroscientists who attended the
first ever NIH (National Institutes of Health) and
HA Hydrocephalus Conference in September 2005 in Maryland.
Make sure to look at the links section also and contact
information.
http://www.ninds.nih.gov
– National Institute of Neurological Disorders
and Stroke – Information on Hydrocephalus and
research
http://www.med.uvm.edu/madisfund/hydro_faq/hydro_faq.html
- Madi’s Fund in conjuction with University
of Vermont Medical School – Funds research on
hydrocephalus
http://www.stars-kids.org/main.html
- STARS-kids is a non-profit organization that raises
awareness and funds for research to advance shunt
technology and its effect on the brain.
http://www.cerebra.org.uk
New treatment for Hydrocephalus in premature infants
One of the major complications of a premature birth
is bleeding into the ventricles (chambers) of the
brain (haemorrhages). Large haemorrhages cause progressive
enlargement of the ventricles and head. Of children
with this condition, 60% develop cerebral palsy and
30% have major disabilities. The only treatment is
life-long dependence on a 'shunt', a surgically placed
tube and valve system, which takes excess fluid to
the abdomen.
The University of Bristol has developed
a new treatment which aims to remove as much of the
blood and toxic substances, as possible, from the
ventricular system before hydrocephalus becomes irreversible.
DRIFT (Drainage, Irrigation and Fibrinolytic Therapy)
was first developed at the University of Bristol and
will be the treatment used in a trial involving infants
of 4 weeks or less. The trials will be carried out
at South Mead Hospital, Bristol and Queen Mother's
Hospital, Glasgow and will look at whether neurological
development can be improved, as well as shunt dependence
reduced, through the use of this treatment.
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