hydrocephalus support group
hydrocephalus research

Hydrocephalus Research Guild -- Formed in 2006 to raise awareness of hydrocephalus and funds for research at Children's Hospital led by Dr. Anthony Avellino and Dr. Richard Morrison.

  Proteomics of Cerebral Spinal Fluid (CSF) in Hydrocephalus ResearchDr. Anthony Avellino, Assistant Professor of Neurological Surgery at Seattle Children’s Hospital and Regional Medical Center and the University of Washington

http://www.hydrocollab.org Sponsored by the Hydrocephalus Association (HA) www.hydroassociation.org in San Francisco: Welcome to HydroCollab -- the place where hydrocephalus clinicians and researchers can virtually come together to address issues with hydrocephalus. Read presentations by leading neurosurgeons and neuroscientists who attended the first ever NIH (National Institutes of Health) and HA Hydrocephalus Conference in September 2005 in Maryland. Make sure to look at the links section also and contact information.

http://www.ninds.nih.gov – National Institute of Neurological Disorders and Stroke – Information on Hydrocephalus and research

 

http://www.med.uvm.edu/madisfund/hydro_faq/hydro_faq.html - Madi’s Fund in conjuction with University of Vermont Medical School – Funds research on hydrocephalus

http://www.stars-kids.org/main.html - STARS-kids is a non-profit organization that raises awareness and funds for research to advance shunt technology and its effect on the brain.

http://www.cerebra.org.uk New treatment for Hydrocephalus in premature infants
One of the major complications of a premature birth is bleeding into the ventricles (chambers) of the brain (haemorrhages). Large haemorrhages cause progressive enlargement of the ventricles and head. Of children with this condition, 60% develop cerebral palsy and 30% have major disabilities. The only treatment is life-long dependence on a 'shunt', a surgically placed tube and valve system, which takes excess fluid to the abdomen.

The University of Bristol has developed a new treatment which aims to remove as much of the blood and toxic substances, as possible, from the ventricular system before hydrocephalus becomes irreversible. DRIFT (Drainage, Irrigation and Fibrinolytic Therapy) was first developed at the University of Bristol and will be the treatment used in a trial involving infants of 4 weeks or less. The trials will be carried out at South Mead Hospital, Bristol and Queen Mother's Hospital, Glasgow and will look at whether neurological development can be improved, as well as shunt dependence reduced, through the use of this treatment.

 

hydrocephalus facts

Hydrocephalus costs the nation $1 billion in healthcare each year.

Neurosurgery, The Official Journal of the Congress of Neurosurgeons, January 2005.

Hydrocephalus Children